Jordanian baby Maria's life saved with 2.5 million dollars
Ten-month-old Jordanian infant Maria is facing the most severe form of "Spinal Muscular Atrophy" (SMA Type 1), a rare genetic disease that affects the nerve cells controlling the muscles and causes their gradual deterioration, putting her life at risk. The cost of the gene therapy needed to save her amounts to $2.5 million, which is not available in Jordan. Her ongoing struggle with symptoms such as loss of the ability to move and breathe gives her hope of receiving treatment. Her family appeals to the community and international organizations to intervene and provide Maria with the necessary care, which could save her from early death and enable her to live a normal life. The situation becomes more critical as her symptoms worsen, especially given her fragile health condition and rising temperatures in winter, which may lead to serious respiratory infections requiring the use of a ventilator.
تنويه: هذا ملخص تم إنشاؤه بواسطة الذكاء الاصطناعي
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