UK hypermobility diagnosis delayed up to 21 years

A study led by the University of Edinburgh found that people in the UK with hypermobility conditions such as hypermobile Ehlers-Danlos syndrome (hEDS) often wait up to 21 years for diagnosis due to low awareness among healthcare professionals. Many patients experience chronic pain, joint dislocations, gastrointestinal symptoms, and mental health issues, with some traveling outside their region for diagnosis. The research emphasizes the urgent need for improved, multidisciplinary care pathways to reduce diagnosis delays and support affected individuals.

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