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Jesy Nelson upset over MPs muscle screening debate
Jesy Nelson expressed outrage after MPs debated the limited rollout of newborn screening for spinal muscular atrophy (SMA) in the UK. SheCampaigned for universal testing after her twins' diagnosis with SMA, which is treatable if identified early. The government plans to introduce screening from October 2026, but only 72% of newborns in the UK will have access, excluding several regions. Nelson criticized this "post-code lottery," emphasizing the importance of timely diagnosis and treatment for improving outcomes.
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