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Source:
The Columbus Dispatch
Fore One Purpose Builds Community for Rare Disease
The Andelyn Foundation's annual Fore One Purpose golf tournament raised funds to support gene therapy treatment for children with nonketotic hyperglycinemia (NKH), a rare genetic disorder. This year, the event helped fund a clinical trial for two siblings, Drake and Vivian O’Sullivan, offering hope for a potential cure that could benefit a larger portion of the NKH population. The foundation aims to expand its support for families battling rare diseases through further clinical trials and community outreach.
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