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Child Nearly Lost Life to Rare Disease Now 26 and Thriving
Olivia DeKold, at age 26, was born with a rare genetic digestive disorder causing intestinal failure, leading to multiple surgeries and lifelong reliance on total parenteral nutrition (TPN). Despite faced with severe health challenges, including risks to her liver and infections, she has maintained a resilient and active life, traveling, hiking, and planning a family. A recent surgical intervention reduced her intestinal length and diameter, improving her quality of life and delaying the need for a transplant, highlighting her determination and positive outlook amid ongoing health struggles.
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