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بوابة الفجر
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Source: بوابة الفجر
1 Dayبوابة الفجر
Source: بوابة الفجر
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The Egyptian Ministry of Health participated in the Fifth International Conference on Rare Diseases to promote efforts for early detection, accurate diagnosis, and available treatment for affected individuals. Officials reviewed the country's efforts, including screening over 792,000 newborns for genetic disorders, the spinal muscular atrophy treatment program, and the premarital screening initiative that benefited more than 3 million people. The discussion also covered amending the law supporting the funding of high-cost treatments and launching a national registry for rare diseases, along with a plan to develop an integrated system to ensure comprehensive care for patients with rare disorders according to the latest standards.
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