21 Hrs
اليوم السابع
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اليوم السابع

2026-11-09T03:00:00.000Z

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Rare Disease Panel Role

Rare Disease Panel Role

Law No. 5 of 2024 provides for the Minister of Health to establish a scientific committee comprising experts in genetic and rare diseases. The committee is responsible for recommending diseases whose treatments merit financial support; preparing guidelines, in cooperation with the relevant entities, for approval by the Egyptian Health Council; and submitting technical and periodic reports to the Fund’s Board of Directors on ways to address these diseases at the national level. The Fund’s bylaws shall determine the committee’s other responsibilities and its working procedures.

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