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Doctors Misdiagnosed Her Sleep Issue

Doctors Misdiagnosed Her Sleep Issue

Amy Clifton struggled with a nearly 30-year sleep disorder later diagnosed as type 1 narcolepsy, a condition caused by a lack of orexin in the brain that leads to severe sleep issues, hallucinations, and muscle weakness episodes. Despite early symptoms from childhood, she was misdiagnosed multiple times, which caused significant distress and self-harm thoughts. Her diagnosis was finally confirmed in her thirties, leading to treatment options that improved her sleep and hallucinations, though access to medication remains challenging due to insurance issues. Clifton now advocates for greater awareness of narcolepsy and aims to improve timely diagnosis and treatment.

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