14 Hrs
Source:
الشورى
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Deputy Hani Shahat questions Ministry on Duchenne patient suffering
The article highlights Deputy Hani Shahat's efforts in directing a parliamentary question to the government regarding the situation of patients with Muscular Dystrophy "Duchenne," whose number exceeds 7,000 patients. The question focuses on the role of the Ministry of Health in providing medications and treatment, expanding rehabilitation centers, training medical staff, and assessing patients' benefit from the comprehensive health insurance system. It also emphasizes the importance of civil society's cooperation in supporting those affected through financial and moral support, as well as providing medical devices. Additionally, effective coordination between government agencies and non-governmental organizations is essential to ensure the rights of these patients and improve their quality of life. The article underscores the need for ongoing medical care, rehabilitation, and social support for patients, reflecting the importance of a comprehensive approach to managing Duchenne muscular dystrophy.
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