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2026-08-05T15:06:51.000Z

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Health launches rare disease registry

Health launches rare disease registry

The Libyan Ministry of Health, under the Government of National Unity, announced the establishment of the "National Program for Rare Diseases and Specialized Medications," with the aim of building a national registry for rare diseases to support health planning and scientific research. The program includes developing molecular and genetic diagnostic services, facilitating patients’ access to specialized treatments and medications, and establishing a nationwide network linking hospitals and reference centers to reduce the need to send samples abroad. Additionally, the program emphasizes raising awareness early and enabling early diagnosis of diseases, providing pre-marriage genetic counseling services, and supporting scientific research and collaboration with international centers, all with the goal of improving the quality of healthcare for patients and increasing the capacity to diagnose and manage rare diseases in Libya.

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