Ministry of Health Launches Rare Disease System
The Ministry of Health of the Government of National Unity announced the establishment of the National Program for Rare Diseases and Special-Order Medications, aimed at improving diagnostic and treatment services for patients affected by these conditions. The program includes developing a national registry for rare diseases, enhancing molecular and genetic diagnosis, implementing early screenings for newborns, and providing genetic counseling before and after pregnancy. It also seeks to support scientific research, facilitate patients’ access to domestically produced specialized medications, and create a network connecting hospitals and related centers, with the goal of reducing the need to send samples abroad and improving the quality of healthcare.
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